Patient Advocacy in Healthcare: The Importance of Timely and Transparent Communication

Recent events have brought patient advocacy and medical malpractice to the forefront of public consciousness. A patient's experience with an aneurysm screening reveals the importance of clear communication and prompt follow-up in the healthcare system.

A 3mm Aneurysm: Not an Emergency But Worth Following Up

A 3mm aneurysm, as documented in a patient's case, is not typically considered an emergency, nor does it require immediate treatment. While the patient was informed of the findings, there is a crucial point to highlight: the responsibility of the Emergency Room (ER) doctor to communicate such findings effectively, especially when the patient has no history of an arteriovenous malformation (AVM) or aneurysm. The finding was noted in March, and the patient was informed in June. The ER doctor did not take the responsibility to explain the significance of the “suspicious shadow” on the brain CT, leading to confusion and concern.

Serial Aneurysm: A More Severe Case

The same ER doctor's follow-up with the patient led to a more serious situation. A “suspicious shadow” on the brain CT was interpreted as a dangerous 10cm aneurysm on the internal carotid artery. This was confirmed by an intracerebral angiogram, which revealed a unique “nipple” on the aneurysm, making it more likely to burst. This necessitated immediate attention, but the patient was advised to follow up with a neurologist after discharge. The neurologist provided clear and detailed explanations, recommending a coiling procedure six months later.

Healthcare System Failures

These cases highlight the importance of vigilance from patients themselves. The article also touches on the broader issue of healthcare system failures. For example, a patient's husband had a cholesterol level that was frankly elevated, but the General Practitioner (GP) did not inform him despite regular physical check-ups every six months. Such oversights underscore the need for patients to be proactive in their medical care.

Responsibility and Obligation

Both the patient and the healthcare provider have significant responsibilities in ensuring patient safety and well-being. Patients are urged to stay on top of their results, consulting when results are not disclosed within two weeks, or more if necessary. If a case of neglect or error occurs, patients must be proactive in lodging complaints. Hospitals, doctors, and licensing boards should all be informed of the issue to ensure future improvements in the healthcare system.

Complaints and Accountability

Complaining to the hospital, the licensing board, and the regulating board of hospitals in one's state is the most effective way for patients to hold healthcare professionals accountable. Collecting enough complaints can push for systemic changes that prevent similar incidents from occurring in the future. Patient advocacy is not just about individual cases; it can lead to broader improvements in medical procedures and protocols.

Ultimately, the role of patient advocacy is crucial in ensuring that we can trust the healthcare system to provide accurate, timely, and clear information. Proactive communication and vigilant self-advocacy are essential for the best possible medical outcomes.